Monday, July 30, 2012

A 2nd Birthday Photo Book


Look at what I finally finished this evening. I joined Shutterfly a long time ago and get emailings for all of their specials. This book only cost me $8 in shipping. You can create your own personalized photo books at Shutterfly.com.

Friday, July 13, 2012

Another Photo Challenge - Gratitude

This challenge comes from the blog Positively Present and is a 30-day photo challenge originally posted back in November of 2011. Of course I found it on Pinterest. Think I will work this one in in September or November. Who wants to join me???

Wednesday, July 11, 2012

August 10th is Around the Corner

The date is set, the room is reserved (Ronald McDonald House), and the flights have been booked (thanks Papa Charlie). We will be heading back to Columbus, OH in just about a month for Greyson's next round of Sclero. We are expecting a very short procedure (1 hour) with no drains (yipeeee) and no need to stay the night in the hospital. Dr. Spaeth and Dr. Shiels have a plan for Sclero now and then in mid to late October followed by a much shorter surgery a week later. I love a good plan and this one seems to be making the most sense right now.

Greyson has been doing GREAT and we are excited that no issues have popped up with his Lymphatic Malformation since last October. His chest/shoulder look AMAZING and no where close to what it looked like when he was born. Many people have asked why we are doing more procedures since he looks so good so I thought I would explain it here if more of you are wondering the same thing.

First off, the tissue in his chest (and there is still more even though we can't see it) that is malformed is very unpredictable and no two LM act alike. It can sit and do nothing or grow at any time "unprovoked" and there is a good chance it will get bigger if he gets sick (like an upper respiratory infection) which wouldn't be good because the tissue in there could get infected. The LM doesn't cause him to have a weakened immune system but if he were to get sick it can cause his LM to get angry and react. :)

The doctors we are working with believe that the more of the tissue you treat, and/or get out, the less of the possibility of it filling up or growing...especially if it is connected. So our goal is to treat/get out what we can in hopes that it deters future flare ups or growth. Dr. Spaeth thinks that these two round of Sclero and surgery this fall may contain it enough so that Greyson won't have to continue having MRI's, sclero, etc. possibly until he hits puberty. Some LM are affected by hormonal changes. And getting it done this early means he probably won't remember it :)

I have said it before and I will say it again...Greyson is doing great and is having no problems with his LM and we are very grateful for that. We have learned a lot throughout this journey and continue to learn more each day. We hope that being proactive now will make the future a more enjoyable time when we can spend our future vacation time on actual vacations and not traveling to hospitals :)
Thanks again to everyone for all of the support and love. I wish you all could spend some time with Greyson these days. He is such a sweet, loving, energetic, happy, funny little guy and he keeps us hopping minute to minute.

Brooke (Michael and Greyson)

Monday, July 9, 2012

4th of July Festivities

A rodeo, a Popsicle, and fireworks....what else do you need on the 4th of July? 
(besides maybe the lake)

Brooke

Wednesday, July 4, 2012

Boom Run 2012

A record setting year (I think). Chanti and I ran together again at the Carthage Boom Run and this time focused a bit on time. I think I might have broken my 5k PR but am going to have to collect some data to verify.

They also had a huge turnout which is great for the Cross Country team since its a fundraiser. Maybe a Wednesday 4th helped that out a bit.

Thinking we probably didn't place, we decided to run back to town at a bit more relaxed pace. I ended the day with almost 7m which is longer than my week 1 of my marathon training schedule called for, but more on that later.

Run On!
Brooke

Tuesday, July 3, 2012

P365+1: Days 174-184

It's official...my P365 is now an iPhone/Instagram P365 :)I may occasionally add in a DSLR pic but who has time to keep up with all that???


184 - 7/2/12: Yes, I did draw those by hand...no tracing. G was quite impressed with them both.

183 - 7/1/12: Croup again??? GRRRR (glad we had the meds left over from last time. No need to go to the ER just called the Doctor.

182 - 6/30/12: Getting ready for fireworks over the lake. G loved hanging out on top of the pontoon with the fam.

181 - 6/29/12: Friends

180 - 6/28/12: Getting ready for Mira's B-day. G added the stickers. Little over the top.

179 - 6/27/12: Super G - and no I didn't give him the pose...he just naturally did it.

178 - 6/26/12: Afternoon with Gramps and Grandma

177 - 6/25/12: Sucked into America Ninja Warrior again.

176 - 6/24/12: I love the crispy part too but I save it for the end. This boy goes straight for it.

175 - 6/23/12:Ice cream at 8pm may not have been the best plan for bedtime but it sure was yummy.

 
174 - 6/22/12: Glad dad is home to fix stuff.