Project 365

via Instagram 3/28/13: Beautiful day for a lunchtime run. #p365

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via Instagram 3/27/13: Pinterest rug project done. Not perfect but done. Remember next time: let glue dry for suggested time. #p365 #Pinterest (repeat photo cause I tagged it wrong)

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via Instagram 3/26/13: Hanging out with me in the office. #p365

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via Instagram 3/25/13: Figured out that 1 rectangle = 4 triangles. #p365

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via Instagram 3/24/13: Documenting life doesn't always make sense to everyone but this completely cracked me up. Let me translate...the boys are storing their bow-and-arrows on their backs and they get them out when it's time to shoot the "bad guys". #p365

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via Instagram 3/23/13: Hanging out with Grandma Di. #p365

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via Instagram 3/22/13: Calling his friends to come over and play. #p365

Vascular Anomalies Clinic Visit

In the beginning of March, Greyson visited the Children's Mercy Vascular Anomalies Clinic...basically an appointment with 4 specialists (dermatology, radiology, plastics, hematology). They reviewed all documentation and history since his last visit there (before our trips to Columbus) and basically just told us that he looks great and seems to be doing great.

Lunch at Fritz' between appointments (trains bring your food)

Greyson will have an MRI and Ultrasound April 17 to check out things further. The MRI was already scheduled but they did go ahead and schedule an ultrasound for that same day. They had us take G down for an XRay to check on a Phlibolith (blood clot) that showed up in his pointer finger a week before. He has had a couple of these before and from what we understand they don't hurt him and aren't an issue but take time to break down naturally.

He picked it and wants the next one to be black with Batman.

While we were at Children's Mercy we also took Greyson to visit Tracy in OT. She checked the fit of his new compression glove. We, along with Dr. Spaeth, decided that compression does seem to help his hand swelling a little and having a glove keeps me from having to wrap it with Co-Ban every night. It was kind of a pain since it had to be cut down to fit his fingers. We massage his fingers with vitamin E oil twice a day to help with the external scar and scar tissue. Tracy told us that scar tissue can take more than a year to break down.

He fell asleep waiting for docs.

I will add an update when we have some info from the MRI and ultrasound. We hope that they will guide us in making decisions for upcoming procedures. We will get opinions from doctors at both Children's Mercy in KC and Nationwide Children's Hospital in Columbus, OH.

Take care to all of you.
Brooke, Michael, and Greyson

Navigating a Walk

Greyson has been watching a lot of Jake and the Neverland Pirate's on Disney in recent days.

 

Before we left on our walk Tuesday evening he said he needed to take his "map".

For the first 2 blocks he would stop, unroll and check the map, drop it, and then have to pick it up and roll it back up.

During the walk we had mailbox races, he stopped to check out dirt piles, and he pretended he was a ghost (hat pulled over his face). We are really not sure where he got that idea but it started the night we bought the hat.

 

It was hysterical to watch and even made the cold wind bearable. On the way home we ended up carrying the map and then of course Greyson.

 

Brooke

Project 365

via Instagram 3/21/13: Dinner date with Batman and Robin. #p365

 

Project 365

via Instagram 3/20/13: Mmmmm, steak! It's what's for dinner. ;) #p365

Project 365

via Instagram 3/19/13: Checking his "map" as we head out for a walk. We have been watching a lot of Jake and the Neverland Pirates. #p365

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via Instagram 3/18/13: gone fishin'??? ...Nope, gone runnin' #p365

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via Instagram 3/17/13: More progress in the laundry room. Should be done by next weekend. #p365

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via Instagram 3/16/13: Another fun St. Pat's at McCarthy's. #p365

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via Instagram 3/15/13: Showing off new #dblcam app at work meeting. Looks like we are working hard right ;) #p365 #emints

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via Instagram 3/13/13: he figured out he can reach the little water fountain at Target. Bet we won't get to pass it by again. Bring on the germs. #p365

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via Instagram 3/12/13: A little acupuncture. #p365

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via Instagram 3/11/13: Hide & Peak #p365

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via Instagram 3/10/13: Cookies and milk in his "new fort" that he says he made. New Fort = his table with another table and sheet on top. #p365

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via Instagram 3/9/13: G hanging out to play in my ice bath. Brrrrr! #p365

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via Instagram 3/8/13: Prepped and ready to go for most miles ever. 30 here I come. #p365 #picstitch

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via Instagram 3/7/13: Bubble Smiles #p365

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via Instagram 3/6/13: Too many options. Too many projects. Not enough time. #p365 #picstitch

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via Instagram 3/5/13: Broke first piece of wedding "china" today. 15 years old...not too bad but no way to replace it. Not good to hold plate in one hand and hammer in other. Such a multi-tasker I try to be. Didn't pay off today. #p365

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via Instagram 3/4/13: Napping between doctors visits. #p365

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via Instagram 3/3/13: Hanging with his peeps watching Despicable Me! #p365

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via Instagram 3/2/13: G's cool new compression glove. He loves it and it is pretty cool but needs a bit of adjustment. Will be sending it back for fingers to be tightened. #p365

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via Instagram 3/1/13: Oh Khald (COMO)i coffee how I love thee. #p365 #emints