Saturday, August 13, 2011

Still Waiting for Second Opinions - Update

It seems that second opinions don't come quickly and we are practicing our patients. We have in requests to the Vascular Anomalies clinic at Boston Children's Hospital and Waner Children's Vascular Anomalies Foundation in New York. We also hope to get a request into a group of doctors at Nationwide Children's Hospital in Columbus, Ohio. With all of these doctors looking at Greyson's case we hope that someone will have a plan that is best for him.

In the mean time, Greyson's arm is improving little by little. He can now push off with his right arm and tries to use it most of the time. His wrist is still not working for him and his fingers don't have much strength but he can grab onto things and it doesn't slow him now much.

We are waiting for an appointment for Greyson with the Brachial Plexis Clinic (a group of doctors that work with kids who have nerve damage in their arm) in KC on Sept. 1. We took him to the lake today and he loved it. Next week Greyson and I will be going on his first plane ride to New Mexico to spend some time with Grandparents.

Take care. We will share more when we have more information. Thanks for the support.
Brooke (Michael & Greyson)

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