Greyson had a GREAT check-up with the doctors at the Vascular Anomalies Clinic this afternoon. He was the center of attention and they are all pleased with his progress and how big he is getting (24 in long, 13 pounds 6 ounces). We had a couple of shifts of doctors come in and out; thinking 7 doctors, 2 nurses, 1 nurse practitioner, and 1 medical social worker. It was a full room for sure.
They are very happy that we are seeing some shrinkage with the growth and still plan on doing another sclerosing procedure as scheduled in the middle of August. Dr. Rivard, the radiologist, thinks that he will have taken care of the majority of the large cysts then and this treatment doesn’t work on the small ones so he will be finished. The plastic surgeons, Dr. Jiang and Dr. Rast, want to see Greyson back around the beginning of October to begin planning the surgery to remove “Buddy”. Dr. Jiang wanted us to know that he will probably not be able to remove all of it but will get the majority and Greyson may have to have other surgeries in the future. We are planning his surgery to be in mid-January but don’t have any dates set in stone as of yet.
We have noticed that Greyson’s right arm is swelling a bit and there are some lumps and bumps that have been their all along and some that have shown up along the way. The doctors agree that it might be time to look into those and Dr. Rivard will do an MRI to see what is going on when they have Greyson knocked out for the sclerosis. We like the idea of killing two birds with one stone only having to put him under once for multiple tests/procedures.
The doctors at Children’s Mercy are so great and supportive. We are very lucky that Greyson found his way here into their care.
They are very happy that we are seeing some shrinkage with the growth and still plan on doing another sclerosing procedure as scheduled in the middle of August. Dr. Rivard, the radiologist, thinks that he will have taken care of the majority of the large cysts then and this treatment doesn’t work on the small ones so he will be finished. The plastic surgeons, Dr. Jiang and Dr. Rast, want to see Greyson back around the beginning of October to begin planning the surgery to remove “Buddy”. Dr. Jiang wanted us to know that he will probably not be able to remove all of it but will get the majority and Greyson may have to have other surgeries in the future. We are planning his surgery to be in mid-January but don’t have any dates set in stone as of yet.
We have noticed that Greyson’s right arm is swelling a bit and there are some lumps and bumps that have been their all along and some that have shown up along the way. The doctors agree that it might be time to look into those and Dr. Rivard will do an MRI to see what is going on when they have Greyson knocked out for the sclerosis. We like the idea of killing two birds with one stone only having to put him under once for multiple tests/procedures.
The doctors at Children’s Mercy are so great and supportive. We are very lucky that Greyson found his way here into their care.
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