Today was a big day for Greyson....he started out his day in the NICU in his new window unit which was MUCH bigger than the other unit we were in but by the end of the day he had his very own Private Room. Now he can have as many visitors as he wants and Michael and I get to stay the night. We won't be enjoying that perk for long though, it seems we might be going home on Saturday morning.
We finally heard from the Radiologist today about what he can do for Greyson, but all of the doctors involved think they need more time to hear back from other specialist across North America before they make a recommendation. This is not a run of the mill kind of newborn problem where they can just turn in a book and see the treatment. Many kids are either born with this or it develops over time but it seems that the size of Greyson's mass sets him apart. All the doctors involved want to make sure they have all the information possible before they come up with a plan.
We finally heard from the Radiologist today about what he can do for Greyson, but all of the doctors involved think they need more time to hear back from other specialist across North America before they make a recommendation. This is not a run of the mill kind of newborn problem where they can just turn in a book and see the treatment. Many kids are either born with this or it develops over time but it seems that the size of Greyson's mass sets him apart. All the doctors involved want to make sure they have all the information possible before they come up with a plan.
So the short term plan is for us to use a car bed to transport him home, see his pediatrician next week sometime, maybe have a home health care visit to draw blood, and then come back for a clinic visit here at CMH on Monday the 24th when the group will come back together with a few more doctors and develop the long term plan.
We are very excited to get to stay the night with him tonight to practice being real parents. The nurses are only here if we need them and are pretty hands off. They helped with a bath tonight (which he loved and hated) and come in to check vitals a couple of times but not really anything else.
Again we love all the support from our family and friends and know that without all of you we would feel lost. Where I thought when we went home from here things would all be resolved I have learned that this is just the beginning of the journey. I will continue to update the page until we go home and then make updates as we learn more (which will not be every day).
Thanks again,
Brooke (Michael & Greyson)
We are very excited to get to stay the night with him tonight to practice being real parents. The nurses are only here if we need them and are pretty hands off. They helped with a bath tonight (which he loved and hated) and come in to check vitals a couple of times but not really anything else.
Again we love all the support from our family and friends and know that without all of you we would feel lost. Where I thought when we went home from here things would all be resolved I have learned that this is just the beginning of the journey. I will continue to update the page until we go home and then make updates as we learn more (which will not be every day).
Thanks again,
Brooke (Michael & Greyson)
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