Wow, it has been a long day. Michael stayed with Greyson last night at Children's Mercy while I recovered at St. Luke's and neither of us got much sleep so today has been a tiring one.
Greyson ended up having to have a blood transfusion late last night due to anemia. After blood tests this morning we are happy to say that that issue has been resolved for now. There were a few scans done as well and doctors are now up in the air about the type of growth it is. We are getting lots of speculation about what can be done to take care of him and how long it might take. Hopefully after the plastics doctors see him tomorrow, or maybe even Monday, we can get a better idea of a plan. Until all of the doctors meet we really don't know what is going to happen.
The awesome thing is that Greyson is doing great besides the growth. He is so cute, sweet, beautiful, and more. I was able to get a pass to go to Children's Mercy today - it felt so weird to be going to see our baby for just the 2nd time in 24 hours. Michael was the perfect dad who knew all the ins and outs of the NICU and what Greyson needs and wants. Greyson and I finally got to get to know each other and he even got to eat a bit. With the help he latched on and did great (thanks to my sister Tralaine for her guidance). We will have to supplement with formula for now but hopefully not for long.
Again, THANK YOU to everyone that has sent us the caring messages. They help us remember all the people who are rooting for us and have our backs. Michael, Greyson, and I are very lucky to have you all.
Other updates - I have been moved to Room 2437 at St. Luke's and will be discharged on Monday morning and we plan to go on to the Ronald McDonald house from there. If you would like to talk please call 816-932-2947, my iPhone is again having problems and I can't seem to get any texts or phone calls so please email or call the hospital for now. Hopefully we will get that fixed by Monday. Also, I added a couple more photos to the gallery.
Keep us in your thoughts. More updates to come tomorrow and days to follow.
Brooke (& Michael)
Greyson ended up having to have a blood transfusion late last night due to anemia. After blood tests this morning we are happy to say that that issue has been resolved for now. There were a few scans done as well and doctors are now up in the air about the type of growth it is. We are getting lots of speculation about what can be done to take care of him and how long it might take. Hopefully after the plastics doctors see him tomorrow, or maybe even Monday, we can get a better idea of a plan. Until all of the doctors meet we really don't know what is going to happen.
The awesome thing is that Greyson is doing great besides the growth. He is so cute, sweet, beautiful, and more. I was able to get a pass to go to Children's Mercy today - it felt so weird to be going to see our baby for just the 2nd time in 24 hours. Michael was the perfect dad who knew all the ins and outs of the NICU and what Greyson needs and wants. Greyson and I finally got to get to know each other and he even got to eat a bit. With the help he latched on and did great (thanks to my sister Tralaine for her guidance). We will have to supplement with formula for now but hopefully not for long.
Again, THANK YOU to everyone that has sent us the caring messages. They help us remember all the people who are rooting for us and have our backs. Michael, Greyson, and I are very lucky to have you all.
Other updates - I have been moved to Room 2437 at St. Luke's and will be discharged on Monday morning and we plan to go on to the Ronald McDonald house from there. If you would like to talk please call 816-932-2947, my iPhone is again having problems and I can't seem to get any texts or phone calls so please email or call the hospital for now. Hopefully we will get that fixed by Monday. Also, I added a couple more photos to the gallery.
Keep us in your thoughts. More updates to come tomorrow and days to follow.
Brooke (& Michael)
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