It was a mad dash to get discharged from St. Luke's this morning, then off to get prescriptions filled, stopped at the Longfellow Park Ronald McDonald House to check into (move into) our new home, and finally to get to Children's Mercy to see Greyson, feed him, and meet with doctors throughout the day. Sorry to everyone that I didn't get an update posted today but at almost 1am on Tuesday morning, I am just now getting my computer turned on and adding some new photos to the gallery, making an update, checking comments, and catching up on email. Needless to say this update may be short and sweet but I am sure you all understand.
We did get settled into the Ronald McDonald House and have some new contact information to share if you need to get a hold of us. Mail can be sent to 2502 Cherry, Kansas City, MO 64108 and we can be reached in our room at 816-234-3340 or you can leave a message for us. This is a beautiful facility but I am not sure how often we are going to be here besides the sleeping hours.
Greyson was, of course, awesome again today. The nurses are in love with him and a few have asked if they could request to be his primary care nurse when they are on duty. My mom and Charlie spent the morning with him since we weren't able to get there until after noon. They had a wonderful time and even talked to a couple of doctors as they did rounds.
Rachel came to visit today and seemed to be smitten. He entertained her as doctors were in and out throughout the day talking with Michael and I about options in dealing with the growth. Greyson attempted breastfeeding again today with more success. The growth does cause a bit of a challenge so we are also feeding him with a bottle. Michael got to feed him his first breast milk bottle today and as I hear it Greyson sucked it down and I left him with a few more for the night.
The day ended with a visit from Gramps and Grandma Beck and then Michael and I went back for some quite time after dinner. It is amazing how calm it is in the NICU after dark and I love watching and listening to all the nurses - they love these kids so much and I know they love our Greyson as well.
So far there is no word from the doctors about what exactly is going to be done with him. The doctors that have evaluated the situation and run different tests are all supposed to put their heads together towards middle to the end of the week to figure out what the best possible solution for Greyson will be. Michael and I will be brought in (hopefully by Friday) and will make the final decisions. It is hard waiting but know it is all about getting Greyson better and not rushing into a decision just because we want something/anything done now.
Better get to be....exhausted. Enjoy the pictures and there are more to come.
Brooke
We did get settled into the Ronald McDonald House and have some new contact information to share if you need to get a hold of us. Mail can be sent to 2502 Cherry, Kansas City, MO 64108 and we can be reached in our room at 816-234-3340 or you can leave a message for us. This is a beautiful facility but I am not sure how often we are going to be here besides the sleeping hours.
Greyson was, of course, awesome again today. The nurses are in love with him and a few have asked if they could request to be his primary care nurse when they are on duty. My mom and Charlie spent the morning with him since we weren't able to get there until after noon. They had a wonderful time and even talked to a couple of doctors as they did rounds.
Rachel came to visit today and seemed to be smitten. He entertained her as doctors were in and out throughout the day talking with Michael and I about options in dealing with the growth. Greyson attempted breastfeeding again today with more success. The growth does cause a bit of a challenge so we are also feeding him with a bottle. Michael got to feed him his first breast milk bottle today and as I hear it Greyson sucked it down and I left him with a few more for the night.
The day ended with a visit from Gramps and Grandma Beck and then Michael and I went back for some quite time after dinner. It is amazing how calm it is in the NICU after dark and I love watching and listening to all the nurses - they love these kids so much and I know they love our Greyson as well.
So far there is no word from the doctors about what exactly is going to be done with him. The doctors that have evaluated the situation and run different tests are all supposed to put their heads together towards middle to the end of the week to figure out what the best possible solution for Greyson will be. Michael and I will be brought in (hopefully by Friday) and will make the final decisions. It is hard waiting but know it is all about getting Greyson better and not rushing into a decision just because we want something/anything done now.
Better get to be....exhausted. Enjoy the pictures and there are more to come.
Brooke
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