We got home yesterday about 6:30pm. Greyson slept the entire way home and had a nice evening at the house playing with his toys and entertaining a set of Grandparents. We continued to give him his scheduled pain killers to keep him happy and put him down around 9pm. He slept great and only woke one time around 4am. He seemed a little uncomfortable so I gave him more pain medicine and fed him and then he slept until 8am. Was VERY nice to get some sleep in our own beds.
Since Greyson woke up happy we decided to wait on meds until he seemed like he needed it and so far we haven't had to give him any (and it's 3:20pm now). He is so amazing...he is sitting on his own and playing with toys, wanting to stand all the time, and is full of smiles and laughs. He has eaten well today (sitting in the highchair) and has taken his two normal naps.
Greyson was happy to let us change the dressings on his incision which took some time and 3 people to figure out. Wish the wrapping looked as nice as when Dr. Jiang did it (on his own). There is quite a lot of swelling in the front of his shoulder area where they brought a bunch of skin together when taking Buddy off and his right arm is still a bit swollen depending on how we have everything else wrapped. He has two drains in as well and they will stay in until there is nothing draining out of them. We clean those out once a day and measure the output to make sure it is decreasing. He is also taking an antibiotic to keep infection at bay and LOVES it. So nice that he doesn't fight us on any of that.
Michael and I will be here with him this week and will venture back to KC on Thursday (weather permitting) for a check up. We hope to learn what the next steps will be knowing that he will probably have drainage issues for life. We know they will do another surgery to continue working to get his chest a little more "normal" looking and we also need to figure out how they can address the cysts in his arm.
I am going to post more pictures (including one of the incision) in a few minutes. It looks pretty gruesome but know that Greyson doesn't seem to even be bothered by it. Remember, he has had no pain medication since 4am and is being very active. Wow....Kids are so resilient.
Thanks for all the wonderful comments. We will keep in touch throughout his recovery.
Brooke, Michael, and Greyson
Since Greyson woke up happy we decided to wait on meds until he seemed like he needed it and so far we haven't had to give him any (and it's 3:20pm now). He is so amazing...he is sitting on his own and playing with toys, wanting to stand all the time, and is full of smiles and laughs. He has eaten well today (sitting in the highchair) and has taken his two normal naps.
Greyson was happy to let us change the dressings on his incision which took some time and 3 people to figure out. Wish the wrapping looked as nice as when Dr. Jiang did it (on his own). There is quite a lot of swelling in the front of his shoulder area where they brought a bunch of skin together when taking Buddy off and his right arm is still a bit swollen depending on how we have everything else wrapped. He has two drains in as well and they will stay in until there is nothing draining out of them. We clean those out once a day and measure the output to make sure it is decreasing. He is also taking an antibiotic to keep infection at bay and LOVES it. So nice that he doesn't fight us on any of that.
Michael and I will be here with him this week and will venture back to KC on Thursday (weather permitting) for a check up. We hope to learn what the next steps will be knowing that he will probably have drainage issues for life. We know they will do another surgery to continue working to get his chest a little more "normal" looking and we also need to figure out how they can address the cysts in his arm.
I am going to post more pictures (including one of the incision) in a few minutes. It looks pretty gruesome but know that Greyson doesn't seem to even be bothered by it. Remember, he has had no pain medication since 4am and is being very active. Wow....Kids are so resilient.
Thanks for all the wonderful comments. We will keep in touch throughout his recovery.
Brooke, Michael, and Greyson
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